Data Governance and the NDIS

Seed Funding Project Lead Investigator

Dr Sue Olney, UNSW Canberra.

Research team

Dr Karen Gardner and Associate Professor Helen Dickinson from Canberra Business School; and Professor Pamela Hanrahan from the Business School; and Associate Professor Gemma Carey from Centre for Social Impact.

Project Background

This project will review legislation, regulatory and governance requirements, contractual obligations, guidelines, systems, funding models and examples of practice related to the collection and use of data in a disability service and a mainstream service accessed by NDIS participants in a single location. The mapping can expand in future to encompass other contexts, other locations and other categories of services accessed by NDIS participants identified in the Council of Australian Governments’ Principles to determine the responsibilities of the NDIS and other service systems, including health, mental health, early childhood development, child protection and family support, school education, post compulsory education, employment, housing and community infrastructure, transport, justice and aged care.

Project Aim

To create a framework for future research mapping the structures, processes and accountabilities for gathering and using data in disability services and mainstream services accessed by NDIS participants, to identify the opportunities for data driven innovation to improve participant choice and control in the scheme.

Interdisciplinary research collaboration and partnership building

The project will involve collaboration with people with disabilities, multidisciplinary researchers, policymakers, regulators, advocates engaged in disability and consumer protection, and policy practitioners. The project will launch what we envisage will be a long-term interdisciplinary research collaboration between the Public Service Research Group at UNSW Canberra and the UNSW Cybersecurity and Data Governance Research Network. The project builds on recent research into Choice, control and the NDIS, the work of the UNSW Cybersecurity and Data Governance Research Network, and the ARC Linkage project Stewarding thin markets: improving public sector market effectiveness.


Email: Dr Sue Olney Lead Investigator

Data Governance and the NDIS